Comments on: Refusal for IVF Deaf Embryos A Violation of ADA? http://www.mishkazena.com/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/ Just another WordPress weblog Sun, 15 Jan 2012 09:35:46 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: terisma http://www.mishkazena.com/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/comment-page-1/#comment-4669 terisma Fri, 14 Mar 2008 14:51:19 +0000 http://blog.deafread.com/mishkazena/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/#comment-4669 "My feeling is that courts would rule in favor of the deaf couple. I don’t think anyone considers deafness a disability on a par with, say, Down Syndrome." it is still a clear disability. theres no way around it. just because its not as hobbling as being blind doesn't mean its not a deficiency. to purposely choose such a embryo over a healthy one is immoral. whats best for the child to be born is to be born with as full a set of tools as possible. its rather bizarre that deaf people have come to want to protect their disability with such fervor that they would inflict deafness on their child. it also seems to be an odd distortion of reality where the value of hearing has been dismissed by those who have no concept of what they are dismissing. to deprive your child of the sounds of a human voice, the intonation, the sounds of nature, beautiful music, the sounds of every day life is child abuse. but i guess how could deaf people truly value what they cannot even begin to fathom? sound is invisible. and as much as folks will try to tell deaf folks its just like vibration.. its really not. they are just being kind. and thats the problem with the deaf community, they've taken the kindness and the white lies that come with it and mistaken it for something else. “My feeling is that courts would rule in favor of the deaf couple. I don’t think anyone considers deafness a disability on a par with, say, Down Syndrome.”

it is still a clear disability. theres no way around it. just because its not as hobbling as being blind doesn’t mean its not a deficiency. to purposely choose such a embryo over a healthy one is immoral. whats best for the child to be born is to be born with as full a set of tools as possible. its rather bizarre that deaf people have come to want to protect their disability with such fervor that they would inflict deafness on their child. it also seems to be an odd distortion of reality where the value of hearing has been dismissed by those who have no concept of what they are dismissing. to deprive your child of the sounds of a human voice, the intonation, the sounds of nature, beautiful music, the sounds of every day life is child abuse. but i guess how could deaf people truly value what they cannot even begin to fathom? sound is invisible. and as much as folks will try to tell deaf folks its just like vibration.. its really not. they are just being kind. and thats the problem with the deaf community, they’ve taken the kindness and the white lies that come with it and mistaken it for something else.

]]> By: My Future Deaf and Hard of Hearing Grandchildren--You Want To Take That Away? - DeafMom http://www.mishkazena.com/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/comment-page-1/#comment-4668 My Future Deaf and Hard of Hearing Grandchildren--You Want To Take That Away? - DeafMom Fri, 28 Dec 2007 17:49:35 +0000 http://blog.deafread.com/mishkazena/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/#comment-4668 [...] Mishka Zena ponders the genetic rights of deaf and hard of hearing people and the Americans with Disabilities Act on her blog: Refusal of IVF Deaf Embryos a Violation of the ADA? [...] [...] Mishka Zena ponders the genetic rights of deaf and hard of hearing people and the Americans with Disabilities Act on her blog: Refusal of IVF Deaf Embryos a Violation of the ADA? [...]

]]> By: inirini http://www.mishkazena.com/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/comment-page-1/#comment-4667 inirini Wed, 05 Dec 2007 08:30:52 +0000 http://blog.deafread.com/mishkazena/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/#comment-4667 It is indeed a slippery slope. I say, screw genetic testing if the couples know they have the deaf gene. If I went through that, I would be outraged, because really... deafness is one of the most common birth 'defects' in America. How about just granting them their child without a fuss. Last I checked, being deaf doesn't inhibit you. It is indeed a slippery slope. I say, screw genetic testing if the couples know they have the deaf gene. If I went through that, I would be outraged, because really… deafness is one of the most common birth ‘defects’ in America.

How about just granting them their child without a fuss. Last I checked, being deaf doesn’t inhibit you.

]]> By: Jean Boutcher http://www.mishkazena.com/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/comment-page-1/#comment-4666 Jean Boutcher Wed, 05 Dec 2007 04:58:15 +0000 http://blog.deafread.com/mishkazena/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/#comment-4666 P.S. I forgot to add that Sorenson Genome also does the DNA testing. P.S.

I forgot to add that Sorenson Genome also does
the DNA testing.

]]> By: Jean Boutcher http://www.mishkazena.com/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/comment-page-1/#comment-4665 Jean Boutcher Wed, 05 Dec 2007 04:46:59 +0000 http://blog.deafread.com/mishkazena/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/#comment-4665 Elizabeth, It is my understanding that during the Jordan administration, a geneticist came to Gallaudet to administer DNA testings amongst students in 1989 or thereabouts. (I do not know if she is still there.) Would you, by any chance, know what was the true motive of the geneticist for testing students? Would you think that she collected the names of testées who were found to be deaf gene carriers? What I know for a fact is that a male student narrated about his experience about undertaking the DNA testing. He said that the geneticist measured his head, hands, legs, feet. Elizabeth,

It is my understanding that during the Jordan administration, a geneticist came to Gallaudet to administer DNA testings amongst students in 1989 or thereabouts. (I do not know if she is still there.) Would you, by any chance, know what was the true motive of the geneticist for testing students? Would you think that she collected the names of testées who were found to be deaf gene carriers? What I know for a fact is that a male student narrated about his experience about undertaking the DNA testing. He said that the geneticist measured his head, hands, legs, feet.

]]> By: Karen http://www.mishkazena.com/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/comment-page-1/#comment-4664 Karen Wed, 05 Dec 2007 00:27:30 +0000 http://blog.deafread.com/mishkazena/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/#comment-4664 My daughter has a gene that guarantees she will have a deaf or hard of hearing child (passed through female mitochondria). If she were to need IVF in the future, that would present a heck of a situation. My daughter has a gene that guarantees she will have a deaf or hard of hearing child (passed through female mitochondria). If she were to need IVF in the future, that would present a heck of a situation.

]]> By: DT http://www.mishkazena.com/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/comment-page-1/#comment-4663 DT Tue, 04 Dec 2007 22:39:02 +0000 http://blog.deafread.com/mishkazena/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/#comment-4663 Yup, Mishka, a scary, slippery-slope topic and one that beehooves us to be ever vigilant by not taking the ADA for granted. We need to give support to our brethren in the UK and everywhere else this might arise because, if we don't, who knows how soon this horror will reach our shores and the halls of Congress! Yup, Mishka, a scary, slippery-slope topic and one that beehooves us to be ever vigilant by not taking the ADA for granted. We need to give support to our brethren in the UK and everywhere else this might arise because, if we don’t, who knows how soon this horror will reach our shores and the halls of Congress!

]]> By: Christy http://www.mishkazena.com/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/comment-page-1/#comment-4662 Christy Tue, 04 Dec 2007 20:45:41 +0000 http://blog.deafread.com/mishkazena/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/#comment-4662 Wow.....this is slippery. If IVF clinics are allowed to eliminate embryos because they have a "deaf gene" (or however it works) - how long will it be before they allow elimination on basis of gender? Wow…..this is slippery. If IVF clinics are allowed to eliminate embryos because they have a “deaf gene” (or however it works) – how long will it be before they allow elimination on basis of gender?

]]> By: m http://www.mishkazena.com/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/comment-page-1/#comment-4661 m Tue, 04 Dec 2007 20:40:48 +0000 http://blog.deafread.com/mishkazena/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/#comment-4661 Is genetic testing automatically done on all IVF embryos? Can't potential parents just tell the IVF center that they don't want genetic testing done - they'll take whatever the good Lord gives them just like if they conceived naturally? Is genetic testing automatically done on all IVF embryos? Can’t potential parents just tell the IVF center that they don’t want genetic testing done – they’ll take whatever the good Lord gives them just like if they conceived naturally?

]]> By: kim http://www.mishkazena.com/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/comment-page-1/#comment-4660 kim Tue, 04 Dec 2007 20:00:17 +0000 http://blog.deafread.com/mishkazena/2007/12/04/refusal-for-ivf-deaf-embryos-a-violation-of-ada/#comment-4660 This is thought-provoking! It's a legal mess waiting to happen, I'm sure. Once we begin to make laws about who has the right to be born it's a slippery slope. We're only at the beginning with infertility clinics. Eugenics will open up more doors and more choices. This is thought-provoking! It’s a legal mess waiting to happen, I’m sure. Once we begin to make laws about who has the right to be born it’s a slippery slope. We’re only at the beginning with infertility clinics. Eugenics will open up more doors and more choices.

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